Apellis is seeking potential participants for its Patient Ambassador Program. As part of the program, participants will take part in trainings for the preparation of events where they may share about their geographic atrophy (GA) journey. Please understand that a limited number of individuals will be selected to participate. Apellis staff will talk with you [Read More]
Author: Ken West
Access in Sight – National Macular Degeneration Advocacy and Action Week
As part of AMD Awareness Month, and having declared the fourth week in February Access in Sight – National Macular Degeneration Advocacy and Action Week, the Age-related Macular Degeneration Foundation (AMDF) is inviting members of the AMD community to come to Washington, DC, on February 28-29, to meet with their representatives in Congress and the Senate to [Read More]
Survey for Individuals Living with Neovascular Age-related Macular Degeneration
We hope this message finds you well. Prevent Blindness is helping VOZ Advisors, a consulting firm that specializes in patient advocacy and engagement during the drug development process. They are currently working with a global biopharmaceutical company to gain a deeper understanding of the challenges and experiences faced by individuals living with neovascular age-related macular degeneration [Read More]
New Study Finds Higher Prevalence of Age-Related Macular Degeneration (AMD) Cases than Previously Determined and a High Degree of County Variation
A new study “The Prevalence of Age-Related Macular Degeneration in the United States In 2019” published in JAMA Ophthalmology, found that in 2019, there were an estimated 19.83 million Americans were living with some form of age-related macular degeneration (AMD) in 2019. This is an increase of approximately more than 2.75 times previous estimates (which used a more [Read More]
Join Us for a Free Webinar on the New Living Well With Low Vision
Are you living with vision loss and blindness, have a family member or loved one with vision loss, or work with individuals with vision loss? If you answered yes, please join us on November 16 from 6:00-6:45pm Eastern to: Understand what low vision is and how trusted information and resources can ease the burden of [Read More]