Here are opportunities to socialize and share information with others living with various retinal degenerative conditions.
Live Support Groups
American Council of the Blind
Foundation Fighting Blindness
International Low Vision Support Group
TeleSupport
Internet Message Boards
American Foundation for the Blind
Eye and Vision
Foundation Fighting Blindness
Internet E-mail Groups (Listservs)
BADEYES – socialization, help and humor for people with retinal degeneration.
E-mail: [email protected]
List Owner: Fred Brown
Blind-Diet – designed to meet the specific needs of blind and visually impaired individuals who are striving toward a healthier lifestyle.
To subscribe, send the message SUBSCRIBE BLIND-DIET (Your First and Last Name) to [email protected].
BLINDFAM – for families who include a member who is blind.
To subscribe, send the message SUBSCRIBE BLINDFAM (Your First & Last Name) to [email protected].
BLINDJOB – promotes discussion on any and every aspect of employment as it relates to blind people.
To subscribe, send the message SUBSCRIBE BLINDJOB (Your First and Last Name) to [email protected]/.
E-mail: [email protected] or [email protected]
Listowner: Bruce Toews
Blind-side – discussion about anything related to current events, celebrities, and other newsworthy topics among the blind and visually impaired.
To subscribe, send a blank message to [email protected].
BLINDNWS – This one way mailing list is the Blind News Digest.
To subscribe, send the message SUBSCRIBE BLINDNWS (Your First & Last Name) to [email protected].
BRAILLE – for the discussion of Braille in Czech and English.
To subscribe, send the message SUBSCRIBE BRAILLE (Your First & Last Name) to [email protected].
BRCTR – This list is for the Braille Research Center Forum.
To subscribe, send the message SUBSCRIBE BRCTR (Your First & Last Name) to [email protected].
bsports – discussion of topics dealing specifically with sports for the blind.
To subscribe, send the message SUBSCRIBE BSPORTS (Your First and Last Name) to [email protected].
E-mail: [email protected]
Listowner: J.J. Meddaugh
BUDDY-L – for guide dog users.
To subscribe, send the message SUBSCRIBE BUDDY-L (Your First & Last Name) to [email protected].
Bvi-Parents Mailing List – Bvi-Parents is a list where parents of blind and visually impaired children can come to find information and support.
To subscribe, send any message to: [email protected].
Moderator: Sarah Blake.
CHM_lifestyles – a chat list for people with choroideremia. Invitation only.
List owner: Bill Tucker.
CHOROIDEREMIA – all topics related to choroideremia.
E-mail: [email protected]
List owner: Bill Tucker.
HANDS – primarily aimed at blind high school and college students.
To subscribe, send the message SUBSCRIBE HANDS (Your First and Last Name) to [email protected].
E-mail: [email protected]
I-DEVICES LIST – For low vision people with iPads and iPods. To subscribe, send a message to [email protected] with SUBSCRIBE on the subject line.
LOWVIS – for people who have, or are interested in low vision. Technical information only.
To subscribe, send the message SUBSCRIBE LOWVIS (Your First & Last Name) to [email protected].
MIDI-MAG – for blind musicians to discuss adaptive access to computer-based music making technologies.
To subscribe, send the message SUBSCRIBE MIDI-MAG (Your First & Last Name) to [email protected].
NABS-L – for National Alliance of Blind Students symposium.
To subscribe, send the message SUBSCRIBE NABS-L (Your First & Last Name) to [email protected].
Naked Eye – discussion about surgical treatment methods against myopia, including current research, results, techniques, products, and personal experiences.
To subscribe, send the message SUBSCRIBE NAKED-EYE (Your First & Last Name) to [email protected].
OANDM – discussion of topics related to orientation and mobility.
To subscribe, send the message SUBSCRIBE OANDM (Your First & Last Name) to [email protected].
PRDVSERV – discussion of all retinal degenerations in German.
To subscribe, write to the list owner, and ask to be added.
R-BLASTOMA – for persons with Retinoblastoma, their family and friends.
To subscribe send the message SUBSCRIBE R-BLASTOMA to [email protected].
Listowner: Gilles Frydman.
RET-PIG – retinitis pigmentosa, medical and research oriented.
To subscribe, send the message SUBSCRIBE RET-PIG (Your First & Last Name) to [email protected].
E-mail: [email protected].
RP Fresh Sight – an Internet discussion board for teens with retinitis pigmentosa and similar diseases.
To subscribe, go to: http://groups.yahoo.com/group/RP_Fresh_Sight.
RP-Friends – an open forum for people with RP.
To subscribe send a blank message to: [email protected]
List owner: Carlton Griffin.
RPLIST – support and information regarding all retinal degenerations.
To subscribe, send the message SUBSCRIBE RPLIST (Your First & Last Name) to [email protected].
E-mail: [email protected].
RPLISTE-FR – discussion of all retinal degenerations in French.
To subscribe, send the message SUBSCRIBE RPLISTE-FR (Your First & Last Name) to [email protected].
E-mail: [email protected].
USHERS – for persons with Usher syndrome, family and friends.
E-mail: [email protected].
List owner: Randall Pope.
For a list of blindness and low vision related mailing lists, see: http://www.hicom.net/~oedipus/blist.html, or send the message GET BLIST INFO to [email protected].